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Know Your Number
English: “Dr. Harvey Cushing,” oil on canvas, by the American artist Edmund Tarbell. Courtesy of the Dittrick Medical History Center. (Photo credit: Wikipedia) From my email: As an advocate for...
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In the US? Ask your Member of Congress to join the Rare Disease Congressional...
Help us strengthen the rare disease community’s voice on Capitol Hill! Please take 3 minutes to ask your Member of Congress to join the Rare Disease Caucus at http://bit.ly/RareAlert. It’s easy –...
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Help Grow the Rare Disease Congressional Caucus
The Rare Disease Congressional Caucus will help bring public and Congressional awareness to the unique needs of the rare disease community – patients, physicians, scientists, and industry, and create...
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Research on Cushing’s Disease Presented at ENDO 2013
Researchers at PHAR, in conjunction with experts from Novartis Pharmaceuticals Corporation, presented the results of several studies on Cushing’s disease at the Endocrine Society’s 95th Annual Meeting...
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Bone Complications in Patients with Cushing’s Syndrome: Looking for clinical,...
Osteoporosis International, 11/14/2013 Clinical Article Trementino L, et al. – Bone loss and fractures are a common complication of CS. The authors investigate the role of gender, disease etiology,...
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Webinar: How to Discuss Genetic Disease with Your Loved Ones
Date: April 1, 2015 Time: 11:00 am PT / 2:00 pm ET There are currently about 7,000 rare diseases identified worldwide, and approximately 80 percent of these are caused by genetic changes. But...
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